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Effective communication and collaboration within the team can help harness these qualities and drive the team towards its goals.
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Trisomy 8: How to Help Siblings Understand and Support Their Brother or Sister
When a child is diagnosed with Trisomy 8, also known as Trisomy 8 Mosaicism Syndrome (T8MS), the entire family is impacted—including siblings. Brothers and sisters may feel confused, worried, or even left out as parents focus on medical appointments and therapy sessions. Open, caring conversations help siblings feel included and better understand what their brother…
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Joubert Syndrome Type 6: How to Build the Right Therapy Team for Your Child
Joubert Syndrome Type 6 (JS Type 6) is a rare neurodevelopmental disorder that affects coordination, muscle tone, vision, and learning. With such a complex condition, no single therapy or specialist can address every need. Building a strong, collaborative therapy team is one of the most important steps a family can take to help their child…
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Williams Syndrome: How Families Build Resilience and Joy Together
Raising a child with Williams Syndrome comes with unique joys and daily challenges. This rare genetic condition, characterized by a distinctive personality, medical concerns, and learning differences, invites families to cultivate both resilience and joy in their journey. Families facing Williams syndrome often find themselves redefining what success, happiness, and connection mean in their lives.…