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Finding Community Support When Raising a Child with Microcephaly
Raising a child with Microcephaly can feel isolating, especially when friends or family don’t fully understand your daily challenges. But the truth is—you are not alone. Across the world, countless parents are navigating similar experiences, learning from one another, and building meaningful communities of support. Whether you connect online, in-person, or through healthcare providers, building…
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Caring for Mental Health After Pediatric Lyme Disease
A diagnosis of Lyme Disease, especially when it impacts the nervous system, doesn’t just affect a child’s body—it can also impact their mood, emotions, and sense of safety in the world. Children recovering from Lyme Disease often experience anxiety, frustration, or sadness as they cope with lingering fatigue, pain, or changes in daily life. Supporting…
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Helping Children Thrive After GBS Sepsis and Meningitis
Recovering from Group B Streptococcus (GBS) Sepsis and Meningitis is only the beginning of the journey for many infants and families. While some babies recover without lasting effects, others may face developmental challenges due to the impact of infection on the brain and nervous system. Supporting your child’s growth after a serious illness means watching…
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Gentle Physical Therapy at Home for Mitochondrial and Basal Ganglia Conditions
Children with Mitochondrial Disorders and Basal Ganglia Conditions often have limited energy and muscle endurance. While movement is important for strength and function, too much effort can lead to exhaustion. That’s why gentle, consistent physical therapy at home makes such a difference—it helps build skills while respecting your child’s energy limits. The key is keeping…
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Collaborating with Schools for IEP Success in Intellectual Disabilities
Children with intellectual disabilities often benefit from individualized support in school, which is where an Individualized Education Program (IEP) becomes essential. But creating a truly helpful IEP takes teamwork between parents, teachers, and therapists. When families and schools collaborate closely, children are more likely to reach their academic, social, and personal goals. Partnering with Schools…
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Chronic Lyme in Children: Physical and Emotional Support After Diagnosis
Lyme disease, caused by the bacterium Borrelia burgdorferi and spread by ticks, is one of the most well-known vector-borne illnesses in the world. While many children recover quickly after early treatment, others may experience lingering or chronic symptoms that affect their physical, cognitive, and emotional well-being long after the initial infection. When a child is…
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GBS Recovery in Infants: Developmental Support and Family Guidance
Group B Streptococcus (GBS) is a type of bacteria that can cause serious infections in newborns, including sepsis (blood infection) and meningitis (infection of the membranes surrounding the brain and spinal cord). While many babies recover, the experience can leave lasting emotional and developmental effects—for both the child and their family. Our Journey Through GBS…
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Daily Care for Mitochondrial and Basal Ganglia Conditions: Meals, Movement, and Energy Balance
Mitochondrial disorders and basal ganglia conditions are rare but impactful neurological conditions that affect how the body creates and uses energy. Children with these diagnoses may experience low energy tolerance, muscle weakness, motor delays, and movement coordination challenges, making everyday activities more demanding than they appear. These conditions often involve multisystem concerns—from gastrointestinal difficulties to…
