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Trisomy 8: How to Help Siblings Understand and Support Their Brother or Sister
When a child is diagnosed with Trisomy 8, also known as Trisomy 8 Mosaicism Syndrome (T8MS), the entire family is impacted—including siblings. Brothers and sisters may feel confused, worried, or even left out as parents focus on medical appointments and therapy sessions. Open, caring conversations help siblings feel included and better understand what their brother…
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Parenting Through Medical Complexity: A Kabuki Syndrome Guide
Parenting a child with Kabuki Syndrome often means managing complex medical needs alongside daily family life. With potential challenges ranging from heart conditions and feeding difficulties to immune system concerns and developmental delays, it’s easy to feel overwhelmed. But with careful planning, trusted care teams, and strong parent advocacy, families can create routines that support…
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Therapy and School Support for Children with Chromosome 22 Duplication
For families raising a child with Chromosome 22 Duplication Syndrome, therapy and school supports play a vital role in helping them learn, grow, and connect with others. Children with this rare genetic condition may face challenges in speech, motor skills, learning, and social development, but with the right team in place, they can reach meaningful…
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Building Inclusive Classrooms for Students with Down Syndrome
Down syndrome is a genetic condition caused by the presence of an extra chromosome 21. It affects physical development, learning, and communication—but with early support, children with Down syndrome can grow into happy, confident individuals who thrive at home, in school, and within their communities. At Panassea, we believe in nurturing every child’s potential while…
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Feeding Challenges and Oral Motor Support in Down Syndrome
Down syndrome is a genetic condition caused by the presence of an extra chromosome 21. It affects physical development, learning, and communication—but with early support, children with Down syndrome can grow into happy, confident individuals who thrive at home, in school, and within their communities. At Panassea, we believe in nurturing every child’s potential while…
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Trisomy 8: Navigating Rare Diagnoses and Family Conversations
Trisomy 8, often referred to as Trisomy 8 Mosaicism Syndrome (T8MS), is a rare chromosomal condition where an extra copy of chromosome 8 appears in some—but not all—of the body’s cells. This genetic mosaicism means symptoms and outcomes can vary widely. Some individuals may have few or no noticeable effects, while others may experience developmental…
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Kabuki Syndrome: Coordinated Care and Confidence for Medically Complex Families
Kabuki Syndrome is a rare genetic condition that affects multiple body systems and presents with a wide range of medical, developmental, and behavioral challenges. Children with Kabuki Syndrome may experience low muscle tone, feeding difficulties, hearing loss, immune deficiencies, heart conditions, and intellectual or learning disabilities. Because it impacts so many areas of a child’s…
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Chromosome 22 Duplication: Family Life, Therapy, and School Support
Chromosome 22 Duplication Syndrome is a rare genetic condition caused by an extra piece of genetic material on the 22nd chromosome. Because duplications can vary in size and location, symptoms and developmental outcomes differ widely from child to child. Some children may experience delayed milestones, speech and language challenges, learning disabilities, autism-like traits, or hypotonia…
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Supporting Growth and Inclusion in Down Syndrome
Down syndrome is a genetic condition caused by the presence of an extra chromosome 21. It affects physical development, learning, and communication—but with early support, children with Down syndrome can grow into happy, confident individuals who thrive at home, in school, and within their communities. At Panassea, we believe in nurturing every child’s potential while…
