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Blount’s Disease: When Is Surgery the Right Choice for Your Child?
Blount’s disease, a growth disorder affecting the tibia (shinbone), can cause significant bowing of the legs. While braces and physical therapy are often first-line treatments, some children may eventually require surgery to correct the deformity. Knowing when to make this decision is one of the most important — and sometimes overwhelming — choices for parents…
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Helping Children with Spina Bifida Build Independence at Home and School
Children with Spina Bifida may face unique physical and medical challenges, but they are also capable of learning, growing, and achieving greater independence with the right support. Supporting your child’s independence from a young age builds confidence, life skills, and resilience for the future. Independence doesn’t mean doing everything alone. It means giving your child…
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Practical Family Tips for Living with Nemaline Myopathy
Nemaline Myopathy (NM) is a rare genetic muscle disorder that causes muscle weakness, low tone (hypotonia), and fatigue. Families navigating NM often become creative problem-solvers—finding ways to adapt daily routines, support their child’s energy, and celebrate every milestone. No two children with NM are exactly alike. Some may walk independently, others may use mobility aids.…
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Everyday Mobility Tools for Children with Dandy-Walker Syndrome
Children with Dandy-Walker Syndrome often experience challenges with balance, coordination, and motor planning due to differences in the cerebellum and surrounding brain structures. Mobility tools and environmental adaptations play a key role in helping these children move confidently through their daily routines. The right tools can provide safety, independence, and joy in movement—whether at home,…
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How Therapy and Medical Care Work Together for Dystonia
Dystonia treatment often involves a combination of medical care and therapy. Medication may help reduce muscle spasms, but therapy helps children build strength, flexibility, and functional skills for daily life. Working together, these approaches support both symptom relief and long-term progress. The Role of Therapy and Medical Care Together Children with dystonia often need a…
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Building Calm and Predictable Routines for Children with Dystonia
Daily routines offer comfort and predictability for children living with Dystonia, a movement disorder that can bring unexpected muscle spasms, fatigue, and discomfort. A calm, predictable day helps children feel more in control of their body and environment—even when their movements feel unpredictable. Small, thoughtful routines can reduce stress for both children and caregivers. Creating…
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Making Your Home Accessible for Children with Cerebral Palsy
Cerebral Palsy (CP) is a lifelong condition that affects muscle tone, movement, and posture. It is caused by abnormal development or damage to the parts of the brain that control movement, often before birth. While the condition varies widely from child to child, what remains constant is the need for compassionate, individualized support—at home, in…
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IEP Success: Supporting Students with Cerebral Palsy in School
Cerebral Palsy (CP) is a lifelong condition that affects muscle tone, movement, and posture. It is caused by abnormal development or damage to the parts of the brain that control movement, often before birth. While the condition varies widely from child to child, what remains constant is the need for compassionate, individualized support—at home, in…
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Blount’s Disease in Children: Building Confidence and Knowing When to Consider Surgery
Blount’s Disease is a growth disorder that affects the bones of the lower leg, particularly the tibia (shinbone). It causes the leg to angle inward, creating a bow-legged appearance that typically worsens over time. While mild bowing is common in toddlers, Blount’s Disease is a progressive condition that requires monitoring and, in some cases, surgical…
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Spina Bifida at Home: Accessibility and Building Your Child’s Independence
Spina Bifida is a neural tube defect that affects the development of the spine and spinal cord. Depending on the type and severity, children may experience mobility limitations, bladder and bowel challenges, and sensory or cognitive differences. But with the right support, they can thrive—at home, at school, and in their communities. At Panassea, we…
