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Joubert Syndrome Type 6: How to Build the Right Therapy Team for Your Child
Joubert Syndrome Type 6 (JS Type 6) is a rare neurodevelopmental disorder that affects coordination, muscle tone, vision, and learning. With such a complex condition, no single therapy or specialist can address every need. Building a strong, collaborative therapy team is one of the most important steps a family can take to help their child…
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Therapy Planning for Progressive Symptoms in H-ABC Syndrome
H-ABC Syndrome (Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum) is a rare neurological condition where symptoms such as motor difficulties, coordination loss, and muscle tone changes progress over time. While the disorder is complex, thoughtful therapy planning can support your child’s comfort, abilities, and joy at every stage. Therapy for H-ABC isn’t about…
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Helpful Tech Tools for Learning Confidence
Technology can open new doors for children with learning disabilities, making reading, writing, math, and organization easier. But with so many apps and tools out there, it’s important to find the ones that truly meet your child’s needs. Assistive Tech Tools That Really Work Today’s tech isn’t just for games—it can be a powerful bridge…
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Making Homework Easier for Kids with Learning Disabilities
Homework time can feel frustrating for children with learning disabilities—and for parents too. But with the right approach, families can turn homework into a smoother, less stressful routine. It’s about creating an environment where your child feels supported, not pressured. How to Support Homework Without Power Struggles Homework time can be one of the biggest…
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Joubert Syndrome Type 6: Managing Complex Needs with Therapy and Care Team Support
Joubert Syndrome is a rare genetic disorder that affects the brainstem and cerebellum, leading to coordination, breathing, and developmental challenges. Type 6, in particular, may involve more significant medical concerns such as hypotonia (low muscle tone), respiratory instability, vision and kidney involvement, and feeding and motor delays. Families facing a diagnosis of Joubert Syndrome Type…
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H-ABC in Children: Understanding the Condition and Planning Therapy Over Time
H-ABC (Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum) is a rare and progressive neurological condition that affects a child’s brain development, movement, and communication. It is caused by mutations in the TUBB4A gene and is classified under leukodystrophies—a group of disorders that impact white matter and myelin in the brain. Because H-ABC is…
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Learning Disabilities: Early Signs, Homework Tips, and Tools That Help
Learning disabilities (LDs) can impact how a child reads, writes, processes numbers, or remembers information. These differences are lifelong—but with early support, practical tools, and the right attitude, children with LDs can thrive academically, emotionally, and socially. At Panassea, we help families understand how to identify LDs early, how to support learning at home without…
