Spina Bifida

Understanding Spina Bifida: Personalized Therapy for Lifelong Mobility and Independence

Every child with Spina Bifida has a unique journey—and at Panasséa, we’re here to support it with personalized, expert care. Whether your child has recently been diagnosed or is managing ongoing therapy needs, we offer compassionate, adaptable services for every stage of development.

Learn About Our Services


What is Spina Bifida?

Spina Bifida is a congenital condition that occurs when the spinal cord and surrounding structures don’t form properly during early fetal development. It falls under a broader category of conditions known as neural tube defects and can vary in severity from mild to more complex presentations.

The three main types of Spina Bifida are:

  • Spina Bifida Occulta: The mildest form, often causing no symptoms.
  • Meningocele: A sac of fluid protrudes through the spine, but the spinal cord is not in the sac.
  • Myelomeningocele: The most severe form, where part of the spinal cord and nerves are exposed, often leading to mobility and neurological issues.

Children with Spina Bifida may face challenges such as:

  • Muscle weakness or paralysis in the legs
  • Bladder or bowel dysfunction
  • Orthopedic concerns like clubfoot or scoliosis
  • Hydrocephalus (excess fluid in the brain)
  • Learning or attention difficulties

With early interventions, assistive devices, and individualized therapy, children with Spina Bifida can achieve greater independence and mobility.

Quick Facts:

  • Occurs in approximately 1 in 1,000 births
  • Results from incomplete development of the neural tube
  • Early treatment and therapy improve outcomes dramatically

Why Choose Panasséa?

Specialized Therapy That Adapts to Your Child

At Panasséa, we tailor therapy to your child’s functional level, strengths, and long-term goals. Our experienced team is passionate about helping children with Spina Bifida grow stronger, more confident, and more independent in daily life.

  • Integrated Therapy Approach: We combine physical, occupational, and speech therapy based on your child’s specific needs.
  • Custom Equipment Support: We help identify and implement the right mobility aids and adaptive tools.
  • Inclusive and Empowering: We partner with families to build confidence, resilience, and routines at home and school.
  • Flexible Formats: Choose between in-person therapy, guided home programs, or telehealth services.
  • Goal-Oriented Care: Therapy plans are continuously reviewed and updated based on progress and growth.

Services We Offer

Therapy Designed Around Your Child’s Needs

  1. Physical Therapy (PT):
    • Builds strength, flexibility, and mobility. Helps children learn to use mobility aids such as braces, walkers, or wheelchairs, and promotes safe movement patterns.
  2. Occupational Therapy (OT):
    • Focuses on self-care tasks like dressing, toileting, and feeding. Also addresses fine motor skills and promotes independence in daily routines.
  3. Speech and Language Therapy:
    • Supports language development and communication, especially for children with hydrocephalus-related learning difficulties. Also helps with feeding and oral motor control if needed.
  4. Assistive Technology & Equipment:
    • We help families explore orthotics, adaptive seating, toileting systems, and mobility devices to support function and comfort.
  5. Parent & Caregiver Support:
    • Provides coaching, resources, and emotional support for families managing long-term care and transitions through different life stages.

Understanding the Journey

How We Work With You

  1. Initial Consultation:
    • Meet with our team to share your child’s history, current challenges, and therapy goals. We’ll explain how we can help and begin building trust.
  2. Comprehensive Evaluation:
    • A full assessment of physical function, self-care abilities, cognitive skills, and equipment needs to guide individualized planning.
  3. Personalized Therapy Plan:
    • A customized plan including therapy goals, schedules, and recommendations for home or school support.
  4. Ongoing Care & Review:
    • Regular progress reviews and goal updates to ensure your child continues to grow and succeed. We adjust the plan as your child’s needs evolve.

Common Questions:

  • Can my child walk?
    It depends on the severity and location of the spinal defect. Many children use assistive devices to walk, while others use wheelchairs. Therapy maximizes each child’s mobility potential.
  • Does Spina Bifida affect learning?
    Some children may have attention or learning challenges, especially if they have hydrocephalus. Early cognitive and educational support helps address these concerns.
  • Will my child be able to live independently?
    With proper therapy and planning, many individuals with Spina Bifida live independently and actively participate in their communities.
  • Do you provide help with toileting routines?
    Yes. Occupational therapists can help children build skills and routines for managing bladder and bowel needs.

FAQ

Q: Is Spina Bifida hereditary?
A: In some cases, there may be a genetic predisposition, but it can also occur spontaneously. Taking folic acid before and during pregnancy reduces the risk.

Q: Can surgery fix Spina Bifida?
A: Surgery can close the spinal opening and manage complications, but therapy is essential for functional development and independence.

Q: Does my child need therapy long-term?
A: Many children benefit from ongoing support, though therapy frequency may change over time as skills improve.

Q: Can my child go to a mainstream school?
A: Absolutely. With appropriate supports and accommodations, many children with Spina Bifida attend inclusive classrooms and thrive.


Educational Resources:

Spina Bifida

Downloadable Guides:

  • “Spina Bifida Basics for Families”
  • “Bladder and Bowel Management Tips”

Videos:

  • “Physical Therapy for Lower Body Strength”
  • “Mobility Equipment: How to Choose What’s Right”

Blog Posts & Articles:

  • “Creating an Accessible Home Environment”
  • “Supporting Your Child’s Independence”

Book an Appointment

Take the First Step Towards Support

We’re here to help your family thrive. Contact us today to start your journey toward meaningful progress.

Form Fields:

  • Name: [Your Name Here]
  • Contact Information: [Email Address, Phone Number]
  • Preferred Appointment Date/Time: [MM/DD/YYYY or dropdown calendar]
  • Message (optional): [Open Text Field]

Contact Us

Have questions or want to schedule a consultation?

  • Phone: +356 77 090 183
  • Email: contact@panassea.com
  • Address: 50 Erin Serracino Inglott Street, Iklin IKL 1401, Malta
  • Social Media Links:
    • Facebook | Instagram | LinkedIn
  • Trust Badges:
    • Certified Therapists