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Caring for Mental Health After Pediatric Lyme Disease
A diagnosis of Lyme Disease, especially when it impacts the nervous system, doesn’t just affect a child’s body—it can also impact their mood, emotions, and sense of safety in the world. Children recovering from Lyme Disease often experience anxiety, frustration, or sadness as they cope with lingering fatigue, pain, or changes in daily life. Supporting…
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Making Mealtimes Easier for Children with Oral Motor Difficulties
Mealtimes can be a joyful family routine—or a daily struggle—when a child has Oral Motor Difficulties. Challenges with chewing, sucking, swallowing, and tongue movement can turn eating into hard work rather than pleasure. But with simple strategies and a calm approach, you can help your child build confidence and safety at the table. The goal…
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Helping Children with Spina Bifida Build Independence at Home and School
Children with Spina Bifida may face unique physical and medical challenges, but they are also capable of learning, growing, and achieving greater independence with the right support. Supporting your child’s independence from a young age builds confidence, life skills, and resilience for the future. Independence doesn’t mean doing everything alone. It means giving your child…
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Practical Family Tips for Living with Nemaline Myopathy
Nemaline Myopathy (NM) is a rare genetic muscle disorder that causes muscle weakness, low tone (hypotonia), and fatigue. Families navigating NM often become creative problem-solvers—finding ways to adapt daily routines, support their child’s energy, and celebrate every milestone. No two children with NM are exactly alike. Some may walk independently, others may use mobility aids.…
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Therapy Planning for Progressive Symptoms in H-ABC Syndrome
H-ABC Syndrome (Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum) is a rare neurological condition where symptoms such as motor difficulties, coordination loss, and muscle tone changes progress over time. While the disorder is complex, thoughtful therapy planning can support your child’s comfort, abilities, and joy at every stage. Therapy for H-ABC isn’t about…
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How Therapy and Medical Care Work Together for Dystonia
Dystonia treatment often involves a combination of medical care and therapy. Medication may help reduce muscle spasms, but therapy helps children build strength, flexibility, and functional skills for daily life. Working together, these approaches support both symptom relief and long-term progress. The Role of Therapy and Medical Care Together Children with dystonia often need a…
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Building Calm and Predictable Routines for Children with Dystonia
Daily routines offer comfort and predictability for children living with Dystonia, a movement disorder that can bring unexpected muscle spasms, fatigue, and discomfort. A calm, predictable day helps children feel more in control of their body and environment—even when their movements feel unpredictable. Small, thoughtful routines can reduce stress for both children and caregivers. Creating…
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Caring for a Child with Cerebral Palsy: What Every Family Should Know
Cerebral Palsy (CP) is a lifelong condition that affects muscle tone, movement, and posture. It is caused by abnormal development or damage to the parts of the brain that control movement, often before birth. While the condition varies widely from child to child, what remains constant is the need for compassionate, individualized support—at home, in…
