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Parenting Through Medical Complexity: A Kabuki Syndrome Guide
Parenting a child with Kabuki Syndrome often means managing complex medical needs alongside daily family life. With potential challenges ranging from heart conditions and feeding difficulties to immune system concerns and developmental delays, it’s easy to feel overwhelmed. But with careful planning, trusted care teams, and strong parent advocacy, families can create routines that support…
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Kabuki Syndrome: Coordinated Care and Confidence for Medically Complex Families
Kabuki Syndrome is a rare genetic condition that affects multiple body systems and presents with a wide range of medical, developmental, and behavioral challenges. Children with Kabuki Syndrome may experience low muscle tone, feeding difficulties, hearing loss, immune deficiencies, heart conditions, and intellectual or learning disabilities. Because it impacts so many areas of a child’s…
