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Practical Family Tips for Living with Nemaline Myopathy
Nemaline Myopathy (NM) is a rare genetic muscle disorder that causes muscle weakness, low tone (hypotonia), and fatigue. Families navigating NM often become creative problem-solvers—finding ways to adapt daily routines, support their child’s energy, and celebrate every milestone. No two children with NM are exactly alike. Some may walk independently, others may use mobility aids.…