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Finding Community Support When Raising a Child with Microcephaly
Raising a child with Microcephaly can feel isolating, especially when friends or family don’t fully understand your daily challenges. But the truth is—you are not alone. Across the world, countless parents are navigating similar experiences, learning from one another, and building meaningful communities of support. Whether you connect online, in-person, or through healthcare providers, building…
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Supporting Sensory Needs in Autism: What Families Can Do
Understanding the Sensory Needs of Individuals with ASD Children and adults with autism often experience the world in a unique sensory way. For some, everyday experiences—like bright lights, clothing tags, or background noise—can be overwhelming or even painful. Others may seek out sensory input in ways that look unusual to others. Understanding these sensory differences…
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Living with Nemaline Myopathy: Family Support and Daily Function with Low Muscle Tone
Nemaline Myopathy (NM) is a rare neuromuscular disorder that affects voluntary muscle strength. It’s caused by genetic mutations that impair the structure and function of muscle fibers. Children with NM often have low muscle tone (hypotonia), muscle weakness, and may experience breathing, feeding, and mobility challenges depending on the severity of their condition. Living with…
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Supporting Children with Intellectual Disabilities: Growth, School, and Friendships
Children with Intellectual Disabilities (ID) grow, learn, and thrive at their own unique pace. Every child brings their own strengths, challenges, and rhythm to the world—and with the right support, they can live fulfilling, connected lives. At Panassea, we believe in empowering families, educators, and communities to understand what meaningful support looks like—not only in…
